BY SQUIGGY, 2024
FIGHTING FOR ALMOST THREE YEARS NOW
HELL, IT’S BEEN AN EMOTIONAL RIDE
SOME DAYS I CAN TACKLE HEAD ON
OTHERS I’LL CURL UP AND STAY INSIDE
DAWN BRINGS A BRAND-NEW ROUND
LIFE IS NOW A CHAMPIONSHIP FIGHT
EACH DAY I COME OUT SWINGING
KEEP ON PUNCHING TILL THE NIGHT
UNLIKE NORMAL 3 MINUTE ROUNDS
A ROUND LASTS THE ENTIRE DAY
EACH NIGHT I SIMPLY FALL INTO BED
SLOWLY SHUT MY EYES AND PRAY
PRAY THAT THERE’S A SOLUTION
TO END THE MADNESS IN MY LIFE
SOMETHING TO TAKE AWAY MY PAIN
END MY CHAOS AND MY STRIFE
BUT THIS ILLNESS KEEPS ON GIVING
EVEN WITH THE RIGHT STEPS IN PLACE
NOTHING SEEMS TO HELP CONTROL
THE HORRIBLE TREMORS IN MY FACE
HAPPENING NOW MORE FREQUENTLY
MOVING DOWN MY NECK AND CHEST
WAITING TO SEE A NEW NEUROLOGIST
HOPING SHE’LL KNOW, WHAT IS BEST
WITH THE UPPER NECK AND SPINE
CONSTANTLY KNOTTED AND ALL TIGHT
MULTIPLE PHYSIO SESSIONS WEEKLY
PLUS MASSAGE JUST CAN’T GET IT RIGHT
I’M NOW WAKING UP MOST MORNINGS
WITH PARALASIS DOWN MY LEFT SIDE
ADD IN BOWEL AND BLADDER ISSUES
IT’S A MASSIVE DENT TO MY PRIDE
I’M TRYING MY BEST TO MINIMSE STRESS
BUT THAT’S EASIER SAID THAN DONE
KNOWING THAT I’LL ONLY DETERIORATE
DOESN’T FILL YOU WITH MUCH FUN
BUT IT’S NOT ALL DOOM AND GLOOM
FOR I’VE FINALLY HAD A WIN
MY DISABILITY PENSION WAS APPROVED
LUCKILY AS FINANCES WERE RATHER THIN
I’VE GOT A NEW SET OF WHEELS
WHICH PUT A SMILE UPON MY FACE
A BRIGHT SHINY GOLD COLOUR
I CAN HOON AROUND THE PLACE
I WAS WORRIED HOW I LOOKED ON IT
IT WAS SOMETHING THAT I DREAD
BUT I QUICKLY CAME TO REALISE
MY CONCERN WAS JUST INSIDE MY HEAD
I HAD BIGGER THINGS TO FOCUS ON
LIKE, HOW WAS LIFE GOING TO BE
LEARNING TO LIVE WITH THIS ILLNESS
MEANT I HAD TO SET MY WORRY FREE
DON’T CARE WHAT OTHERS THINK OR SAY
OR IF THEY WILL LEND A HAND
WHEN EVERYTHING IS ALL SAID AND DONE
IT’S ME WHO NEEDS TO UNDERSTAND
LEARNING TO ACCEPT WHAT I’VE LOST
COULD BE A GREAT PLACE TO START
TACKLING WHAT DIFFICUTIES LIE AHEAD
WITH A BURNING DESIRE IN MY HEART
THIS DREADED ILLNESS WON’T DEFINE ME
IT WON’T TAKE ME BACK TO ZERO
IT’S FORCED ME TO BE STRONG AND FIGHT
AND BECOME MY OWN COMPULSORY HERO
Post published 27/07/26
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